LAYLA GRACE

Layla has always been a healthy child, 80th percentile for weight, a great eater, a great sleeper. She is sweet as pie and a little cuddle monkey (she won’t let you put her down!). She has a very advanced vocab for her age which really helps us manage her pain and give her what she needs as her care continues.

Layla had a great 15 month checkup. At around 16 months her sleep habits and appetite started to change and she started to become more irritable. Mid March appetite began to decrease. At the time we thought we were dealing with a “picky eater”. Beginning of May Layla woke up one morning with a swollen eye. We took her to the doctor and she was treated for an ear infection and the doctor said the swelling was just a result of the ear infection. At the same time we noted that her belly was hard and somewhat distended. She had not had a bowel movement for a few days and we were concerned that she was becoming constipated.

The next day we took her to the pediatrician who put her on Mirilax over the weekend and told us to call back Monday. By Monday morning she was not eating at all, still no dirty diaper, her activity level had decreased and was rubbing her belly and lower back and saying “owie”.